Beyond Narcolepsy

I remember the first time I heard the word “narcolepsy”. I was sitting in math class my sophomore year of high school and we watched a video of Rusty the Narcoleptic Dog. As we watched it over and over, everyone in my class busted out in laughter, including myself.

Many people have heard of narcolepsy. Some of you reading this have probably even seen Tweets from Narcoleptic Ned, a Twitter account where people sent in pictures of themselves “sleeping” in random places, as most people assume all narcoleptics do.

Narcolepsy has been featured in several different movies, and is typically portrayed as very comical occurrences.

Like most people, I found these portrayals hilarious. Now, the word “narcolepsy” will forever be something that I disclose to doctors when they ask me about my medical history. However, contrary to popular belief, I do not just fall asleep any time or any place. Instead, I am constantly tired no matter how many hours of sleep I get. This may not seem like a big deal to many people, but after having it for several years, it has become a serious disruption in almost every area of my life. I find it hard to remember the most simple things, I find it very hard to concentrate, and worst of all, I want to sleep all the time.

In high school, I noticed that when I came back from school, all I wanted to do was sleep. It was hard to force myself to do my homework or study because no matter how hard I tried, I could not get past my sleepiness. However, I brushed it off and accepted it as being normal. I lied to friends after making plans with them because I felt like I needed to sleep instead. I felt lazy, and was often accused of being a flake. However, I felt that I could not function if I didn’t take a nap. My naps were often hours long and I woke up refreshed only to be tired again an hour or so later.

Like I said, I accepted all of this as being the norm in my life and did nothing about it. Recently, I mentioned to my mom that I felt that it was a serious issue and went to see a sleep doctor. I did a sleep study last week, and got the results today.

The next few months (I hope it’s only months) will consist of me trying different medications in order to get this narcolepsy under control.  It will be a journey, and I thank everyone ahead of time for being patient with me. I also want to thank everyone for being patient with me in the past, especially when you thought I didn’t want to hang out with you. I hope this clears up any misunderstandings.

I wanted to start this blog to inspire people to reach their fullest potential in life. I want to show that despite this road block that I apparently have been living with for quite some time, I am able to function to the fullest potential that my body will allow me to, and that I will not let narcolepsy control my life. I am living beyond narcolepsy.

If you have any questions, feel free to ask me! I am just learning more about this sleep disorder, but will be happy to answer any questions anyone has. If you’ve read this far down in my post, thank you. 

Also, I want to let everyone know that I in no way resent anyone for finding the humor in narcolepsy. I myself once laughed at certain videos, pictures, etc. of narcoleptics. I simply want to point out that it truly is a serious condition that can effect several aspects of peoples lives!

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3 thoughts on “Beyond Narcolepsy

  1. Megg, you are so strong! Just keep remembering that God brought you to it, and He will get you through it! Love you girl and this is awesome that you have a blog for it. xoxo -Sarah W!

  2. I have recently started blogging about narcolepsy too. I find it is a great way for my friends and family to really get a sense of what it is like to live with narcolepsy every day. I’m sure people think they are doing a great job of empathising when they say “oh I’m so tired all the time too, maybe I have narcolepsy too” or “how great to be able to fall asleep so fast”. They don’t understand what it is like to not have a choice to feel so completely exhausted all the time, and to feel like you are missing out on daily things because of how lethargic you feel. I am finding it so helpful to read other people’s blogs on this. I have never heard of Long QT syndrome, it sounds very similar to cataplexy, which is also a symptom of narcolepsy. I hope you get your medication sorted soon, I have just started taking dexamphetamine and I am finding it really helping. Keep writing, I look forward to your posts! Nx

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